My child could have (but didn’t) die and it’s because of my careless mistake.

I haven’t posted in a very long time. I am back because I want to share this recent incident that happened. It’s a true scary story. We found out Milo was allergic to peanuts when we introduced it to him when he was one year old. He is now 9 years old. He gets tested every year and he is still very allergic. Another known time that he had peanuts, aside from his first tiny dose at age one, was mistakenly given to him by his VI specialist at his preschool when we were not with him. Milo’s reactions were hives and profuse vomiting. EpiPen is always with us and we never had given it to him until yesterday.

I have been very vigilant at reading food labels since we found out he is allergic to peanuts. As the years gone by and with no incident, I have come to realize that I am not as vigilant as I used to be. I learned this because I was very careless and gave Milo a cookie that contained peanut paste. Yes, you heard me. I fed my peanut allergic child peanut. I made a horrible mistake and gave him a cookie without being thorough with looking at the ingredients. It was a chocolate cookie and by seeing that, it subconsciously gave me a reason to not have to be so detail with examining the ingredients carefully. It was wrong, very wrong. I was wrong, very regretfully wrong.

 

Milo had the cookie, got into the car and headed for hjs karate lesson. He felt bad soon after and my husband called to ask me if he ate something new. I said yes and right away I thought F—! and grabbed the box and started looking for the word “peanuts” and there it was “peanut paste.” F–K! was right. They came home and we gave him his Benadryl and waited out for his throw up. We watched for hives but there were none. This was the first time (thanks to me) that we are with him and actually know that he ate peanuts. We did not know how his body would react since each allergic reaction can be very different. It was decided we should take Milo to the emergency room because we read that anaphylactic reactions can happen hours from intake. Soon after Milo got into the car, he threw up and he informed us that his throat is very itchy. My husband called 911 and administered an EpiPen (for the first time ever). The fireman and paramedics came and took Milo to the hospital in the ambulance. Milo was still very chatty with all the firemen and paramedics so it was a very good sign that he was stable.

 

Milo stayed in the hospital for couple hours and since we are not too far from the hospital, he was discharged. Milo was a trooper and so was my husband. I felt horrible and full of guilt but none of them made me feel bad or said a word about what I did because of my careless mistake.

 

The day surprisingly went on like it was planned. Matilda had a pool party in which she attended and had a blast. She did asked me if Milo was going to die while I was taking her to the party. I told her that Milo will be okay because we took all the steps we needed to and if we didn’t, he could die. Owen was over the moon with having the firemen in our home along with the firetruck and a fire paramedic truck in our driveway. I even made it on time to Milo and Matilda’s back to school night (along with my sweaty self and an amazing amount of guilt and relief that Milo was okay).

 

The image of me not reading the instructions carefully kept repeating in my mind along with what if I can go back in time thought. I know I can’t do the latter and that is why I am sharing this with you all so that it won’t happen to you or anyone you know.

 

 

This is my story and luckily it has a happy ending. I learned a very important lesson and so did the rest of the family. Milo learned how serious his allergy can be and that it can be lethal. Matilda also learned how serious it can be. Owen learned that when Milo has a boo-boo, the firemen and paramedics come to our house. We all learned to be vigilant again. Milo learned to remind us about reading the ingredients and that he needs to read the ingredients as well and not rely on others (perfect example of how his mother cannot be trusted). We learned that we have to be more aware of others who also have allergies. My husband and I both learned that getting immediate medical help is the way to go, whether or not there is any immediate reaction.

 

It is very very important to take action when your child (or an adult) comes in contact with the food he/she is allergic to. It is crucial to go to the hospital. Reactions can take hours to happen and sometimes if you wait for a long time to do anything, the result can be lethal. It really is better to be safe than to be sorry.

 

Judgement or no judgement, I don’t care. I just want to share this because we all can get too comfortable at something that we shouldn’t. This is how I will end this post – Hi, I am a mom and today my child could have die because I got too comfortable with his peanut allergy and made a stupid careless mistake.

 

MY KIDS HEART EVERY REASON TO DRESS UP. THANK YOU HALLOWEEN FOR BEING YOU.

1     
1)  Raincoat: Hatley  
2) Matilda: Top: MiniBoden | Pants: Hanna Anderson | Shoes: Milo’s || Milo: Top: JCrew | Shorts: Target | Shoes:NewBalance
3) Top: MUJI | Pants: Hanna Anderson
4  5   6 
4) Milo as Robot 
5) Matilda wearing her last year’s bee costume. Milo wearing Matilda’s this year’s Foofa costume.        
6) This all happened after trick-or-treating when they were giving out candies to the trick-or-treaters. Milo as Chewbacca and Matilda just gave up on wearing pants.
7  8   9 
7) Milo as Captain America and Matilda as a garden gnome for a Halloween parade in town.
8) On the actual Halloween night, Milo decided to be Batman Wolverine and Matilda decided to be Foofa. 9) We were on the way from our house to trick-or-treat.
10  11 12
10) Milo as Batman when I took him to walk around on the day of Halloween.
11) Milo with his Halloween crafty hat the week before Halloween.
12) Matilda sporting her mustache.

Halloween stayed and finally went bye-bye. We pretty much got excited about Halloween a month or so before the actual day and we made the mistake of asking Milo what he wanted to be for Halloween. It switched in a daily basis and when we took him shopping 3 weeks before the actual day, he decided he wanted to be Plex from YoGabbaGabba. Unfortunately the largest size they had was 3-4 years old. So, Milo picked Batman. For the next week or so, he bounced from Batman to Antman to Hawkeye and all the other superheroes. We told him that he needed to make up his mind and Captain America was his final decision. (We kept the Batman costume since Milo dresses up pretty often.) Matilda didn’t really care who she was going to be and being only 20months old, we got to decide for her. We chose Foofa from YoGabbaGabba. We would put Matilda in her costume several times a week to get her used to it but she really didnt care for it that much, so, I got her a garden gnome costume since its just a dress and she would be better about wearing it.

Both kids’s school had a Halloween party and we took the kids to town for the annual Halloween parade follow by trick-or-treating. We went to a pumpkin patch and did all the bouncy houses, haunted houses, pony riding and the train ride.

A week before Halloween, we practiced walking around our neighborhood with the kids when it was light out and when it was dark out. We wanted Milo to know what to expect, from getting used to walking in the dark and having decorations lighting around people’s houses. I highly suggest doing this with kids, especially with VI kids because it really helps to minimize his/her’s anxiety and the unknown especially the blinking/flashing decoration lights.

We ended up trick-or-treating at 7 houses! We are SO very proud of Milo and he was great about it. We were only going to go to 1 house but we did 7 instead. And he picked the house with very minimal decorations and no flashing lights of any kinds. Matilda did all of those and was very good! We came back to our place and Milo loved passing out candies to everyone and seeing all their costume.

We had a great Halloween and I am so proud of my superheroes. Milo decided to be BatmanWolverine and Matilda insisted on being Foofa on the night of Halloween. But for their school party, Milo was Captain America and Matilda was a garden gnome. Then again, it’s like Halloween at our home everyday because they love to dress up.

HELLO SUMMER | GOODBYE SUMMER

Hello! Hello! Hello! The summer came and went and somehow it’s has been so busy that I seriously have not had time to blog. But I am here now. Lets do a quick recap of our summer.

We did a bunch of fun stuff locally and Milo was in school as usual and Matilda had a longer break since her baby class ended in July. We had family members visiting with us for a short time and the kids enjoy their company.  Milo’s eyes have been stable and it’s great but at the same time, I have to think twice about it since its rare that nothing major had happened. (YEAH to that of course!)

My hubby took on our summer project of repainting all our bedrooms. I was of no help in the paint department because my job was to keep the kids away during the process. We did all the rooms in white and I am loving it. We purchased some new furniture for the kids’ room. Our room used to be chocolate brown and now it’s SO bright. We keep thinking that we turned on some bright lights but really, its just the white wall. It’s nice because it is bright for Milo when he is playing in our room. I  have to figure out all the decorations for all the rooms. It will take some time because I never seem to have time to do all the things I want!!

We ended our summer by going to a wedding of our friend and Milo had a blast because he is one dancing machine and he loved taking silly pictures in the photobooth.

I had a bunch of projects on my own and it was a challenge to illustrate what I needed but I did it. I lost some time because my back gave out on me for no reason and I was in pain for a week, then my right hand decided to swell up and it turned out to be some kind of arthritis and that took forever to heal and it still gets bad when I use my right hand too much which sucks a big one since I am right handed. (I guess my body is telling me that I am getting old!)

Here are a bunch of pictures from the summer and I am sure I have left out a bunch of stuff but I am sure you won’t miss it since you don’t even know what. And if I think of it, I will be sure to share at a later time.

1  23

1) Milo: Top: Gap Kids 2) Matilda: Top: JCrew 3) Milo: Top: Sugarman | Pants: MiniBoden | Shoes: New Balance || Matilda: Top: Zara + MUJI | Pants: MotherCare | Shoes: Zara

4 56 

4) Matilda: Shirt: MiniBoden 5) Milo: Shirt: Uniqlo 6) Matilda: Top: JCrew | Pants: Target | Shoes: Milo’s || Milo: Top: KingKow | Pants: MiniBoden | Shoes: New Balance

7 89 

7+8+9) Matilda: Jacket: North Face | Pants: Target || Milo: Jacket: North Face
1011 12

10+11) Milo and Matilda wearing Matilda’s bumblebee costume from last Halloween 12) Milo dressed as Chewbacca
1314 15  

13) Matilda: Top: Mighty Fine tee | Pants: Target 14) Milo: Top: Mighty Fine tee | Pants: MiniBoden
16 1718   
16) Matilda: Top: MiniBoden | Pants: Hanna Anderson 17) Milo: Top: Target | Pants: MiniBoden
19 20 21  
19) Milo: Top: Uniqlo | Pants: MiniBoden || Matilda: Top: Splendid | Pants: GapKids 20) Milo: Top: Mighty Fine tee 21) Matilda: Top: Old Navy | Milo: Top: Old Navy | Swim trunks: Hanna Anderson
22 2324  
22) Matilda: Top: Splendid | Pants: Target 22) Milo: Top: Target | Pants: MiniBoden 23) Matilda: Top: MUJI + MiniBoden | Pants: Target
23 24 25
23+24+25) Milo: Top: Target | Matilda: Top: MiniBoden

Thank you Summer 2012, it was great to know you. We will catch you next year!
xoxo
me

TWO CUTE FOR WORDS.

  
Milo: Top: White undershirt from Marks and Spencer 
Matilda: Top: both top from Naartjie Kids

My two little munchkins are keeping me busy these days, but really good busy.

Let me tell you what we’ve been up to lately with all the pictures that I have taken with my iPhone. There are lots of pictures, but I figure that I have been lacking in posting about the kiddies, I might as well post a bunch now.

Milo: Top: Mini Boden | Shorts: Mini Boden | Shoes: Keen
Matilda: Top: JCrew kids | Pants: Mini Boden | Shoes: Zara Kids | Backpack: Stole from Milo by Sanrio
Both kids had an ophthalmologist appointment and everything is stable for Milo. As for Matilda, this is her first official check up and everything looks healthy. We had her eyes check because Milo’s ophthalmologist told us (not to scare us) that she could get the same conditions as Milo.

Left picture: Matilda: Top: JCrew | Pants: Janie and Jack | Shoes: Milo’s old shoes | Hat: from Costco
Left picture: Milo: Top: Mini Boden | Pants: Mini Boden | Shoes: New Balance | Hat: Anpanman
Right picture: Milo: Top: MUJI + Buzz Lightyear costume | Shorts: Gap Kids | Booties: Gap Kids
Right picture:  Matilda: Top: Milo’s old Mini Boden | Pants: Gap Kids | Hammer: Thor’s mighty hammer

The kids and I went to SFZoo right before July 4th and it was nice since it wasn’t very crowded. We did our usual of petting zoo, riding the Little Puffer, viewing of some animals that aren’t too far away for us to see and we ended with lunch. Another fun thing we did was inviting the cousins over for a big sleep over. The kids had lots of fun and they ended up watching The Secret World of Arrietty and Star Wars.

Left picture: Matilda: Top: Zara Kids | Pants: Gap Kids| Shoes: Salt Water
Left picture: Milo: Top: Mighty Fine tee | Shorts: Mini Boden | Shoes: Keen
Right picture: Matilda: Top: MUJI

Both kids passed out after our fun filled day spent at Piedmont with parade and hanging out with our besties on July 4th. Matilda had her first experience riding with Elmo when we shopped at Toys R Us.
Milo: Top: Gap Kids | Home Pants: Gap Kids 
Matilda: Top: Milo’s Mini Boden | Home Pants: Milo’s

Brother and sister love. Moment like this makes my heart melt and makes me wishes everyone can feel how I feel when I see the two of them together. Its the best of the best.
 Matilda: Top: Milo’s Mini Boden | Home Pants: Milo’s | Doll: Corolle

We got Matilda her first realistic looking doll and a stroller. It’s quiet hard to find one that does not look scary and Corolle makes pretty cute looking ones. 
Milo: Top: MUJI | Home Pants: Gap Kids 
                                              Matilda: Top: Naartjie Kids | Pants: Mothercare

Our house will not be the same if we don’t have dress up as our everyday life. Milo was some Star Wars character, Luke Skywalker or Hans Solo. Matilda is the cutest Ironman I know, way better than Robert Downey Jr. 
Milo: Top: Gap Kids
                                              Matilda: Top: Splendid | Pants: Gap Kids | Slippers: MUJI

We’ve had a pretty good few weeks and Milo loves to dress up everyday and be in character. Matilda loves to steal our slippers and walk away and act surprised when we find her with our stolen slippers. I love these two munchkins and I can’t imagine my life without them. I am so lucky that I get to be a stay at home mom because I would never want to miss a second of their lives, even those crappy, whiny and grumpy moments. 

NEW ADVENTURE FOR THE DAY.

Milo: Top: Zara | Pants: Mini Boden | Shoes: Yo Gabba Gabba Vans
Matilda: Jacket: Jacadi | Pants: Mini Boden | Shoes: Stride Rite

We took the kids to Bay Area Discovery Museum and it was super fun. We got the tickets via Groupon awhile back and I wish we took the kids there earlier. Milo and Matilda had so much fun exploring and playing. We went on a weekday so that it would be less crowded for Milo. Milo tends to do better when there are less people around because it’s more of a challenge for him visually to navigate when there are more kids running around him. We are planning our next visit back (maybe for Milo’s birthday next month) and it is so tempting to do the membership. If you have never visited, you really should go.

FRIDAY FRIDAY FRIDAY. ITS HERE TO STAY (as well as the rain)!

Milo: MUJI top.

Happy weekend everyone. Its going to be a wet St. Patrick’s Day weekend and we need to figure out what to do that does not involve too much going outside with our little ones. Maybe visiting with friends and watching some Hayao Miyazaki movies, baking green cupcakes/cookies, splashing in the rain, playing superheroes, and of course celebrating St. Patrick’s Day.

MY TWO BESTEST BFF TEAM.

Milo: Yo Gabba Gabba concert tee / Gap Kids pants (home pants we called them.) / Gap Kids Superman long sleeve
Matilda: MUJI long sleeve / Mothercare UK pants

Pictures like these make me so happy. These days, when the both of them interact with one another, it is the best thing of my day. I can’t stop smiling and I wish at that moment, everyone I know can come over and witness the cuteness between the two. They are my team and they are each other’s team. They are the perfect team. They are each other’s eyes and ears. Literally. Milo got the super hearing power (with his only one seeing low vision eye) and Matilda has super vision power (with her hearing loss).

Milo and Matilda are what I do each and every day. I can count how many times out of both their lives that I left them with someone else. It’s almost never. It’s not that I don’t choose to or I am a crazy overprotected parent, it’s just that I like to hang out with them and there’s really nothing that important that I have to go to. My hubby and I probably had 4 to 5 date nights since we had Milo and that was almost 4 years ago. We had talked about how it would be nice to go on dates and get someone to come and babysit, but we thought why go through all that (or to bother my parents when they are in town) when we can take them out with us because we like to hang out with them. But recently, I have given this more thoughts and how it would be very nice to go on a date with my hubby even if it’s just a quick dinner, a nice stroll around town or a quick lunch picnic. Because seriously, I think we need that. My parents were in town and we went on a quick dinner date and it was really nice. Really nice. It made me feel refresh and made me appreciate him more in ways that I haven’t because we never take time out for ourselves. But here’s the thing, it is not super easy to find a babysitter and even if I do, I need to train this babysitter on all the extra things that he/she will need to do to take care of Milo in case of medical emergency like his peanut allergy, his asthma, and his prosthesis and how to take it out if it starts to bother him. Would that be too much to ask from a kid, assuming that the babysitter is a kid like it used to be? Are there rules out there about babysitting special needs children in the world of The Babysitter Club*? With all these questions and somewhat concerns, that’s why we never really made an effort to search for one. It’s not because I won’t trust the babysitter, it just seems like it’s too much to ask for an hour or two. Anyone? (I wish I can ask the teacher assistant in his Early Start Program to babysit because he knows them. But how do you ask them that? It seems like of weird. Right?)

*The Babysitter Club. I am speaking of the series that I read when I was growing up. Do kids still read this or do they have other updated version of this like the Twilight coolness of Babysitter Club.

PLASTIC GROWS. IN MY LITTLE DUDE’S EYE.

It has been awhile since I last post a post. I’ve been thinking of you and how much I want to blog but my parents were in town visiting us for the past month and we were too busy with our bonding time. But here I am and let’s get right to it.

February was a month of seeing all of Milo’s specialist – all 4 of them (we had to update all of them on all the crazee things that went on with Milo especially the scary eye bleeding). He had an EUA and his doctor reported to us that he found this little piece of plastic in Milo’s eye. He said he knows plastic do not grow but somehow Milo’s eye grew plastic since they removed his valve in November and that explains why he bled in December as well as in February. We were just happy that they were able to figure out the reason behind his bleeding because I did not want to think my child is an eye bleeder like a nose bleeder. Of course after we were told this information, it took awhile to sink in and after the doctor went back to the OR, I wanted to ask him if it meant that they accidentally overlook and left a little piece of plastic in his eye during his November procedure. The part that got me upset was that we have taken Milo in to see his other specialist after his procedure, but none of them have seen the left over plastic. We actually went in to see his fellow one week prior to the EUA because Milo’s eye was bleeding again and she just shrug it off like it’s your standard nose bleed. So, what the hell was that? Are they not able to see that without putting him under? It all worked out in the end and it was nothing too serious, but seriously, it now makes me have doubt on the fellow and I am not sure if I would trust her. I don’t think she is or will be reading this blog, but if you do, sorry but my kid is way more important than you are.

Milo already outgrew the scleral shell from Thanksgiving and we got a new mold made but unfortunately it got lost in the mail so now we have to wait a little bit longer. Matilda is officially a walker. She started over a month ago but its just in the past week that she got very good at it. She rather walks than crawls now. So, watch out world, you can’t stop her now.

I will post pictures of the kiddies soon. I’ve been wanting to do that since the holidays and our vacation and now it’s getting too ridiculously late and I promise I will. So, hold on a little bit longer.

And oh guys, Spring is here because bugs are out. They are in our house already and I do not like them. If there is such a thing where I can have some sort of laser bug detector bubble around my house to prevent the bugs from entering, that would be super and please tell me the 1-800 number to call so I can order. Or if you have the same idea and want to get in on this invention, give me a call. Sorry bugs, I don’t really care for you but when you are in my house, then I care and I kind of have to get rid of you. Please just don’t come in so I don’t have to be mean to you. Thanks.