It is the beginning of a wonderful relationship. They love one another and sometimes they fight (maybe more than sometimes) but they are each other’s eyes and ears, literally. Milo has one semi-working eye and Matilda has one working ear. They are my perfect pair and I would not change a thing about them.
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1) Raincoat: Hatley
2) Matilda: Top: MiniBoden | Pants: Hanna Anderson | Shoes: Milo’s || Milo: Top: JCrew | Shorts: Target | Shoes:NewBalance
3) Top: MUJI | Pants: Hanna Anderson
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4) Milo as Robot
5) Matilda wearing her last year’s bee costume. Milo wearing Matilda’s this year’s Foofa costume.
6) This all happened after trick-or-treating when they were giving out candies to the trick-or-treaters. Milo as Chewbacca and Matilda just gave up on wearing pants.
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7) Milo as Captain America and Matilda as a garden gnome for a Halloween parade in town.
8) On the actual Halloween night, Milo decided to be Batman Wolverine and Matilda decided to be Foofa. 9) We were on the way from our house to trick-or-treat.
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10) Milo as Batman when I took him to walk around on the day of Halloween.
11) Milo with his Halloween crafty hat the week before Halloween.
12) Matilda sporting her mustache.
Halloween stayed and finally went bye-bye. We pretty much got excited about Halloween a month or so before the actual day and we made the mistake of asking Milo what he wanted to be for Halloween. It switched in a daily basis and when we took him shopping 3 weeks before the actual day, he decided he wanted to be Plex from YoGabbaGabba. Unfortunately the largest size they had was 3-4 years old. So, Milo picked Batman. For the next week or so, he bounced from Batman to Antman to Hawkeye and all the other superheroes. We told him that he needed to make up his mind and Captain America was his final decision. (We kept the Batman costume since Milo dresses up pretty often.) Matilda didn’t really care who she was going to be and being only 20months old, we got to decide for her. We chose Foofa from YoGabbaGabba. We would put Matilda in her costume several times a week to get her used to it but she really didnt care for it that much, so, I got her a garden gnome costume since its just a dress and she would be better about wearing it.
Both kids’s school had a Halloween party and we took the kids to town for the annual Halloween parade follow by trick-or-treating. We went to a pumpkin patch and did all the bouncy houses, haunted houses, pony riding and the train ride.
A week before Halloween, we practiced walking around our neighborhood with the kids when it was light out and when it was dark out. We wanted Milo to know what to expect, from getting used to walking in the dark and having decorations lighting around people’s houses. I highly suggest doing this with kids, especially with VI kids because it really helps to minimize his/her’s anxiety and the unknown especially the blinking/flashing decoration lights.
We ended up trick-or-treating at 7 houses! We are SO very proud of Milo and he was great about it. We were only going to go to 1 house but we did 7 instead. And he picked the house with very minimal decorations and no flashing lights of any kinds. Matilda did all of those and was very good! We came back to our place and Milo loved passing out candies to everyone and seeing all their costume.
We had a great Halloween and I am so proud of my superheroes. Milo decided to be BatmanWolverine and Matilda insisted on being Foofa on the night of Halloween. But for their school party, Milo was Captain America and Matilda was a garden gnome. Then again, it’s like Halloween at our home everyday because they love to dress up.
Hello! Hello! Hello! The summer came and went and somehow it’s has been so busy that I seriously have not had time to blog. But I am here now. Lets do a quick recap of our summer.
We did a bunch of fun stuff locally and Milo was in school as usual and Matilda had a longer break since her baby class ended in July. We had family members visiting with us for a short time and the kids enjoy their company. Milo’s eyes have been stable and it’s great but at the same time, I have to think twice about it since its rare that nothing major had happened. (YEAH to that of course!)
My hubby took on our summer project of repainting all our bedrooms. I was of no help in the paint department because my job was to keep the kids away during the process. We did all the rooms in white and I am loving it. We purchased some new furniture for the kids’ room. Our room used to be chocolate brown and now it’s SO bright. We keep thinking that we turned on some bright lights but really, its just the white wall. It’s nice because it is bright for Milo when he is playing in our room. I have to figure out all the decorations for all the rooms. It will take some time because I never seem to have time to do all the things I want!!
We ended our summer by going to a wedding of our friend and Milo had a blast because he is one dancing machine and he loved taking silly pictures in the photobooth.
I had a bunch of projects on my own and it was a challenge to illustrate what I needed but I did it. I lost some time because my back gave out on me for no reason and I was in pain for a week, then my right hand decided to swell up and it turned out to be some kind of arthritis and that took forever to heal and it still gets bad when I use my right hand too much which sucks a big one since I am right handed. (I guess my body is telling me that I am getting old!)
Here are a bunch of pictures from the summer and I am sure I have left out a bunch of stuff but I am sure you won’t miss it since you don’t even know what. And if I think of it, I will be sure to share at a later time.
My two little munchkins are keeping me busy these days, but really good busy.
The kids and I went to SFZoo right before July 4th and it was nice since it wasn’t very crowded. We did our usual of petting zoo, riding the Little Puffer, viewing of some animals that aren’t too far away for us to see and we ended with lunch. Another fun thing we did was inviting the cousins over for a big sleep over. The kids had lots of fun and they ended up watching The Secret World of Arrietty and Star Wars.
We took the kids to Bay Area Discovery Museum and it was super fun. We got the tickets via Groupon awhile back and I wish we took the kids there earlier. Milo and Matilda had so much fun exploring and playing. We went on a weekday so that it would be less crowded for Milo. Milo tends to do better when there are less people around because it’s more of a challenge for him visually to navigate when there are more kids running around him. We are planning our next visit back (maybe for Milo’s birthday next month) and it is so tempting to do the membership. If you have never visited, you really should go.
Happy new week everyone.
Pictures like these make me so happy. These days, when the both of them interact with one another, it is the best thing of my day. I can’t stop smiling and I wish at that moment, everyone I know can come over and witness the cuteness between the two. They are my team and they are each other’s team. They are the perfect team. They are each other’s eyes and ears. Literally. Milo got the super hearing power (with his only one seeing low vision eye) and Matilda has super vision power (with her hearing loss).
Milo and Matilda are what I do each and every day. I can count how many times out of both their lives that I left them with someone else. It’s almost never. It’s not that I don’t choose to or I am a crazy overprotected parent, it’s just that I like to hang out with them and there’s really nothing that important that I have to go to. My hubby and I probably had 4 to 5 date nights since we had Milo and that was almost 4 years ago. We had talked about how it would be nice to go on dates and get someone to come and babysit, but we thought why go through all that (or to bother my parents when they are in town) when we can take them out with us because we like to hang out with them. But recently, I have given this more thoughts and how it would be very nice to go on a date with my hubby even if it’s just a quick dinner, a nice stroll around town or a quick lunch picnic. Because seriously, I think we need that. My parents were in town and we went on a quick dinner date and it was really nice. Really nice. It made me feel refresh and made me appreciate him more in ways that I haven’t because we never take time out for ourselves. But here’s the thing, it is not super easy to find a babysitter and even if I do, I need to train this babysitter on all the extra things that he/she will need to do to take care of Milo in case of medical emergency like his peanut allergy, his asthma, and his prosthesis and how to take it out if it starts to bother him. Would that be too much to ask from a kid, assuming that the babysitter is a kid like it used to be? Are there rules out there about babysitting special needs children in the world of The Babysitter Club*? With all these questions and somewhat concerns, that’s why we never really made an effort to search for one. It’s not because I won’t trust the babysitter, it just seems like it’s too much to ask for an hour or two. Anyone? (I wish I can ask the teacher assistant in his Early Start Program to babysit because he knows them. But how do you ask them that? It seems like of weird. Right?)
*The Babysitter Club. I am speaking of the series that I read when I was growing up. Do kids still read this or do they have other updated version of this like the Twilight coolness of Babysitter Club.
It has been awhile since I last post a post. I’ve been thinking of you and how much I want to blog but my parents were in town visiting us for the past month and we were too busy with our bonding time. But here I am and let’s get right to it.
February was a month of seeing all of Milo’s specialist – all 4 of them (we had to update all of them on all the crazee things that went on with Milo especially the scary eye bleeding). He had an EUA and his doctor reported to us that he found this little piece of plastic in Milo’s eye. He said he knows plastic do not grow but somehow Milo’s eye grew plastic since they removed his valve in November and that explains why he bled in December as well as in February. We were just happy that they were able to figure out the reason behind his bleeding because I did not want to think my child is an eye bleeder like a nose bleeder. Of course after we were told this information, it took awhile to sink in and after the doctor went back to the OR, I wanted to ask him if it meant that they accidentally overlook and left a little piece of plastic in his eye during his November procedure. The part that got me upset was that we have taken Milo in to see his other specialist after his procedure, but none of them have seen the left over plastic. We actually went in to see his fellow one week prior to the EUA because Milo’s eye was bleeding again and she just shrug it off like it’s your standard nose bleed. So, what the hell was that? Are they not able to see that without putting him under? It all worked out in the end and it was nothing too serious, but seriously, it now makes me have doubt on the fellow and I am not sure if I would trust her. I don’t think she is or will be reading this blog, but if you do, sorry but my kid is way more important than you are.
Milo already outgrew the scleral shell from Thanksgiving and we got a new mold made but unfortunately it got lost in the mail so now we have to wait a little bit longer. Matilda is officially a walker. She started over a month ago but its just in the past week that she got very good at it. She rather walks than crawls now. So, watch out world, you can’t stop her now.
I will post pictures of the kiddies soon. I’ve been wanting to do that since the holidays and our vacation and now it’s getting too ridiculously late and I promise I will. So, hold on a little bit longer.
And oh guys, Spring is here because bugs are out. They are in our house already and I do not like them. If there is such a thing where I can have some sort of laser bug detector bubble around my house to prevent the bugs from entering, that would be super and please tell me the 1-800 number to call so I can order. Or if you have the same idea and want to get in on this invention, give me a call. Sorry bugs, I don’t really care for you but when you are in my house, then I care and I kind of have to get rid of you. Please just don’t come in so I don’t have to be mean to you. Thanks.
Happy New Year guys. I am hoping everyone of you had a wonderful holiday in your own little way. We went on a vacation and we had an awsum time, but I must tell you guys that it started pretty bloody wild. Literally bloody wild.
On our 15 hours outbound flight, Milo’s good eye started bleeding. Yes, BLEEDING. We still had over 8 hours to go until our destination at that point. We thought about what exactly constitute as an emergency landing and if we were to land, I think the closest place at that point would be Japan. And of course to top it off, Milo started throwing up soon after the bloody discovery. And eventually his nose started bleeding intermittently as well. So, for the rest of the flight, his good eye and nose were bleeding and he was throwing up pretty regularly. It was the worst flight of all time. I kept thinking and panicking to myself that oh crap, is he going to loose his vision right now, right before our vacation starts, right before I get to show him all these cool stuff on our vacation and right before we meet up with his grandparents that he has been so eagerly looking forward to visit with.
I called my parents when we landed. I kept thinking of ways to break it to them without freaking them out, but there wasn’t really a good way if I had to use blood and Milo’s good eye in one sentence. We got really lucky and was able to see my dad’s ophthalmologist. The wait time before we saw him was scary. Milo kept saying I can’t see. I would gasped each time but I realized it was because of the giant puddle of blood collected in his eye. The ophthalmologist concluded that Milo must have rubbed his eye hard and made a small incision. He said it’s not uncommon at all and it does happen all the time. A giant sense of relieve was released in the air between myself, my hubby, my parents and possibly the kids.
Milo’s eye bled for couple more days. Matilda caught a cold on the plane and then we all caught it as well. SO, after a week of blood, vomit, and cold, we were so ready to play and we sure did. We had an awsum time and the kids loved seeing all the excitements and holiday decorations throughout the city. We ate all kinds of good food, with the exception that we ate at only two facilities since we wanted to be super safe due to Milo’s peanut allergy. We shopped at all different kinds of toy stores and I keep going back to my favorite store, MUJI. We took Milo and Matilda to Disneyland too.
Time went by super quick and it was so sad to go but I am so happy that we went and that it all worked out and no other crazee medical issues happened.
I want to write a little thing about traveling with special needs children, so, if you have no interest, then Happy New Year and I wish you guys the best of 2012 and I promise that I will try to post more this year and illustrate more. But if you are interested, here it goes. Being away from your home and really, from your own stuff is pretty hard especially when you have kids or special needs kids. During our trip, Milo didn’t like to walk much and it was not easy to carry a 3.5 year old around. Milo did not want to walk because there were so many people and they were all moving at a very fast pace and for being visually impaired, that makes it pretty darn scary and intimidating. It took Matilda awhile to get used to all kinds of loud noises. She turned her head a lot and was looking at me often for possible explanation as to what and where the noises were coming from. Being hearing impaired, it was challenging to be in such a place but at the same time I thought it was a good experience for her to learn to locate sounds. Milo was more challenging during our vacation since he is older and he is not as easy to carry compare to Matilda. (I used to ergo him in our past trip and he felt very secured with me holding him and we would talk about all the things we were seeing.) We wanted to take Milo to many places but we had to keep in mind of what he might like and not like due to his limited vision and whether or not he would be able to see them. I kept wishing there were some sort of ergo like thing for older kids with special needs. I wanted to ergo Milo but my hubby thought I was crazee because my back would have been dead if I were to walk around with Milo. Matilda was in the ergo everyday and she loved it. I guess a stroller would have been perfect but being in such a tight city, it was hard to get around. My hubby and I each had a pretty decent size backpack filled with Milo’s emergency medical supplies, extra clothing, diapers, wipes, Matilda’s baby food and snacks. It was okay when we didn’t make any purchases since we still have our hands to hold or carry Milo and Matilda, but when we did have shopping bags, it was a pretty good workout. I just wonder what your thoughts are and if anyone have any tips on traveling with special needs children. I really want to travel more with my two kids and especially with Milo because I want him to see as much as he can before his vision completely goes, but at the same time, I am reluctant to take him far because it is kind of a pain and also I am afraid to be far from his team of doctors after our bloody plane ride experience. Maybe I can win some kind of awsum ultimate vacation where when I travel with my kids, I would get car service following me around and have access to anything I want so that I know I can always reach doctors for my kids and that I don’t have to worry about Milo not walking. I want stress/medical free trip for my special needs children. All advices and tips are much appreciated.
Anyway, I think I win with this crazee bloody hell plane ride. Happy New Year guys and 2012 better rock your world.