July 4, 2012

Its been awhile since my last post. But I have great reasons for my missing blog days. I was on vacation for couple weeks and when I came back I had to get a new computer and there were some problems with data transfer and just last night I am back to a fully functional computer. WOOT. So, I am back and get ready for my latest updates. And Happy July Fourth. xo me

NEW ADVENTURE FOR THE DAY.

Milo: Top: Zara | Pants: Mini Boden | Shoes: Yo Gabba Gabba Vans
Matilda: Jacket: Jacadi | Pants: Mini Boden | Shoes: Stride Rite

We took the kids to Bay Area Discovery Museum and it was super fun. We got the tickets via Groupon awhile back and I wish we took the kids there earlier. Milo and Matilda had so much fun exploring and playing. We went on a weekday so that it would be less crowded for Milo. Milo tends to do better when there are less people around because it’s more of a challenge for him visually to navigate when there are more kids running around him. We are planning our next visit back (maybe for Milo’s birthday next month) and it is so tempting to do the membership. If you have never visited, you really should go.

YOU.

“YOU” in braille is what the word bubble said.

I do a special post on this very day to someone close to our heart. It has been two years and I still think of her each day, sometimes through my husband, sometimes through my children and the other time is just because I think of her. She was a strong woman and an amazing mother and everyday I want/wish I can tell her that. Whether or not I am a believer in ghost,after-life or guardian angel, I believe she is always with my husband and my children because I see her in all of them.

Milo has a love for cats and so did she. (I know she would be so darn proud.) I truly believe it is her doing and it’s a nice thing to believe in because I want Milo to have a little part of her. I am waiting to see what part of her will Matilda have.

We miss you dearly and you are never forgotten, not even a day.

XOXO
me

GO GET THAT EASTER BUNNY.

I love me some bunnies. I am a huge bunny fan but unfortunately due to my crazee allergy, I can’t have any furry thing in our house. I like Easter because there are so many cute bunnies and chicks everywhere (including my SuperJuicyChicken of course). I really like Peeps and I wish I like to eat them so that I have an excuse to purchase them. But I would love to have a Peeps necklace or a Peeps pattern crib sheet or Peeps pattern socks or even better, I would like to have my SuperJuicyChicken plush to become a tradition like Peeps during Easter.

Happy Easter guys. Go and get some eggs.

PLASTIC GROWS. IN MY LITTLE DUDE’S EYE.

It has been awhile since I last post a post. I’ve been thinking of you and how much I want to blog but my parents were in town visiting us for the past month and we were too busy with our bonding time. But here I am and let’s get right to it.

February was a month of seeing all of Milo’s specialist – all 4 of them (we had to update all of them on all the crazee things that went on with Milo especially the scary eye bleeding). He had an EUA and his doctor reported to us that he found this little piece of plastic in Milo’s eye. He said he knows plastic do not grow but somehow Milo’s eye grew plastic since they removed his valve in November and that explains why he bled in December as well as in February. We were just happy that they were able to figure out the reason behind his bleeding because I did not want to think my child is an eye bleeder like a nose bleeder. Of course after we were told this information, it took awhile to sink in and after the doctor went back to the OR, I wanted to ask him if it meant that they accidentally overlook and left a little piece of plastic in his eye during his November procedure. The part that got me upset was that we have taken Milo in to see his other specialist after his procedure, but none of them have seen the left over plastic. We actually went in to see his fellow one week prior to the EUA because Milo’s eye was bleeding again and she just shrug it off like it’s your standard nose bleed. So, what the hell was that? Are they not able to see that without putting him under? It all worked out in the end and it was nothing too serious, but seriously, it now makes me have doubt on the fellow and I am not sure if I would trust her. I don’t think she is or will be reading this blog, but if you do, sorry but my kid is way more important than you are.

Milo already outgrew the scleral shell from Thanksgiving and we got a new mold made but unfortunately it got lost in the mail so now we have to wait a little bit longer. Matilda is officially a walker. She started over a month ago but its just in the past week that she got very good at it. She rather walks than crawls now. So, watch out world, you can’t stop her now.

I will post pictures of the kiddies soon. I’ve been wanting to do that since the holidays and our vacation and now it’s getting too ridiculously late and I promise I will. So, hold on a little bit longer.

And oh guys, Spring is here because bugs are out. They are in our house already and I do not like them. If there is such a thing where I can have some sort of laser bug detector bubble around my house to prevent the bugs from entering, that would be super and please tell me the 1-800 number to call so I can order. Or if you have the same idea and want to get in on this invention, give me a call. Sorry bugs, I don’t really care for you but when you are in my house, then I care and I kind of have to get rid of you. Please just don’t come in so I don’t have to be mean to you. Thanks.

HELLO TO YOU AND TO YOUR TWO THOUSAND AND TWELVE.

Happy New Year guys. I am hoping everyone of you had a wonderful holiday in your own little way. We went on a vacation and we had an awsum time, but I must tell you guys that it started pretty bloody wild. Literally bloody wild.

On our 15 hours outbound flight, Milo’s good eye started bleeding. Yes, BLEEDING. We still had over 8 hours to go until our destination at that point. We thought about what exactly constitute as an emergency landing and if we were to land, I think the closest place at that point would be Japan. And of course to top it off, Milo started throwing up soon after the bloody discovery. And eventually his nose started bleeding intermittently as well. So, for the rest of the flight, his good eye and nose were bleeding and he was throwing up pretty regularly. It was the worst flight of all time. I kept thinking and panicking to myself that oh crap, is he going to loose his vision right now, right before our vacation starts, right before I get to show him all these cool stuff on our vacation and right before we meet up with his grandparents that he has been so eagerly looking forward to visit with.

I called my parents when we landed. I kept thinking of ways to break it to them without freaking them out, but there wasn’t really a good way if I had to use blood and Milo’s good eye in one sentence. We got really lucky and was able to see my dad’s ophthalmologist. The wait time before we saw him was scary. Milo kept saying I can’t see. I would gasped each time but I realized it was because of the giant puddle of blood collected in his eye. The ophthalmologist concluded that Milo must have rubbed his eye hard and made a small incision. He said it’s not uncommon at all and it does happen all the time. A giant sense of relieve was released in the air between myself, my hubby, my parents and possibly the kids.

Milo’s eye bled for couple more days. Matilda caught a cold on the plane and then we all caught it as well. SO, after a week of blood, vomit, and cold, we were so ready to play and we sure did. We had an awsum time and the kids loved seeing all the excitements and holiday decorations throughout the city. We ate all kinds of good food, with the exception that we ate at only two facilities since we wanted to be super safe due to Milo’s peanut allergy. We shopped at all different kinds of toy stores and I keep going back to my favorite store, MUJI. We took Milo and Matilda to Disneyland too.

Time went by super quick and it was so sad to go but I am so happy that we went and that it all worked out and no other crazee medical issues happened.

I want to write a little thing about traveling with special needs children, so, if you have no interest, then Happy New Year and I wish you guys the best of 2012 and I promise that I will try to post more this year and illustrate more. But if you are interested, here it goes. Being away from your home and really, from your own stuff is pretty hard especially when you have kids or special needs kids. During our trip, Milo didn’t like to walk much and it was not easy to carry a 3.5 year old around. Milo did not want to walk because there were so many people and they were all moving at a very fast pace and for being visually impaired, that makes it pretty darn scary and intimidating. It took Matilda awhile to get used to all kinds of loud noises. She turned her head a lot and was looking at me often for possible explanation as to what and where the noises were coming from. Being hearing impaired, it was challenging to be in such a place but at the same time I thought it was a good experience for her to learn to locate sounds. Milo was more challenging during our vacation since he is older and he is not as easy to carry compare to Matilda. (I used to ergo him in our past trip and he felt very secured with me holding him and we would talk about all the things we were seeing.) We wanted to take Milo to many places but we had to keep in mind of what he might like and not like due to his limited vision and whether or not he would be able to see them. I kept wishing there were some sort of ergo like thing for older kids with special needs. I wanted to ergo Milo but my hubby thought I was crazee because my back would have been dead if I were to walk around with Milo. Matilda was in the ergo everyday and she loved it. I guess a stroller would have been perfect but being in such a tight city, it was hard to get around. My hubby and I each had a pretty decent size backpack filled with Milo’s emergency medical supplies, extra clothing, diapers, wipes, Matilda’s baby food and snacks. It was okay when we didn’t make any purchases since we still have our hands to hold or carry Milo and Matilda, but when we did have shopping bags, it was a pretty good workout. I just wonder what your thoughts are and if anyone have any tips on traveling with special needs children. I really want to travel more with my two kids and especially with Milo because I want him to see as much as he can before his vision completely goes, but at the same time, I am reluctant to take him far because it is kind of a pain and also I am afraid to be far from his team of doctors after our bloody plane ride experience. Maybe I can win some kind of awsum ultimate vacation where when I travel with my kids, I would get car service following me around and have access to anything I want so that I know I can always reach doctors for my kids and that I don’t have to worry about Milo not walking. I want stress/medical free trip for my special needs children. All advices and tips are much appreciated.

Anyway, I think I win with this crazee bloody hell plane ride. Happy New Year guys and 2012 better rock your world.

xoxo
me