Happy new week everyone.
Happy weekend everyone. Its going to be a wet St. Patrick’s Day weekend and we need to figure out what to do that does not involve too much going outside with our little ones. Maybe visiting with friends and watching some Hayao Miyazaki movies, baking green cupcakes/cookies, splashing in the rain, playing superheroes, and of course celebrating St. Patrick’s Day.
Pictures like these make me so happy. These days, when the both of them interact with one another, it is the best thing of my day. I can’t stop smiling and I wish at that moment, everyone I know can come over and witness the cuteness between the two. They are my team and they are each other’s team. They are the perfect team. They are each other’s eyes and ears. Literally. Milo got the super hearing power (with his only one seeing low vision eye) and Matilda has super vision power (with her hearing loss).
Milo and Matilda are what I do each and every day. I can count how many times out of both their lives that I left them with someone else. It’s almost never. It’s not that I don’t choose to or I am a crazy overprotected parent, it’s just that I like to hang out with them and there’s really nothing that important that I have to go to. My hubby and I probably had 4 to 5 date nights since we had Milo and that was almost 4 years ago. We had talked about how it would be nice to go on dates and get someone to come and babysit, but we thought why go through all that (or to bother my parents when they are in town) when we can take them out with us because we like to hang out with them. But recently, I have given this more thoughts and how it would be very nice to go on a date with my hubby even if it’s just a quick dinner, a nice stroll around town or a quick lunch picnic. Because seriously, I think we need that. My parents were in town and we went on a quick dinner date and it was really nice. Really nice. It made me feel refresh and made me appreciate him more in ways that I haven’t because we never take time out for ourselves. But here’s the thing, it is not super easy to find a babysitter and even if I do, I need to train this babysitter on all the extra things that he/she will need to do to take care of Milo in case of medical emergency like his peanut allergy, his asthma, and his prosthesis and how to take it out if it starts to bother him. Would that be too much to ask from a kid, assuming that the babysitter is a kid like it used to be? Are there rules out there about babysitting special needs children in the world of The Babysitter Club*? With all these questions and somewhat concerns, that’s why we never really made an effort to search for one. It’s not because I won’t trust the babysitter, it just seems like it’s too much to ask for an hour or two. Anyone? (I wish I can ask the teacher assistant in his Early Start Program to babysit because he knows them. But how do you ask them that? It seems like of weird. Right?)
*The Babysitter Club. I am speaking of the series that I read when I was growing up. Do kids still read this or do they have other updated version of this like the Twilight coolness of Babysitter Club.
It has been awhile since I last post a post. I’ve been thinking of you and how much I want to blog but my parents were in town visiting us for the past month and we were too busy with our bonding time. But here I am and let’s get right to it.
February was a month of seeing all of Milo’s specialist – all 4 of them (we had to update all of them on all the crazee things that went on with Milo especially the scary eye bleeding). He had an EUA and his doctor reported to us that he found this little piece of plastic in Milo’s eye. He said he knows plastic do not grow but somehow Milo’s eye grew plastic since they removed his valve in November and that explains why he bled in December as well as in February. We were just happy that they were able to figure out the reason behind his bleeding because I did not want to think my child is an eye bleeder like a nose bleeder. Of course after we were told this information, it took awhile to sink in and after the doctor went back to the OR, I wanted to ask him if it meant that they accidentally overlook and left a little piece of plastic in his eye during his November procedure. The part that got me upset was that we have taken Milo in to see his other specialist after his procedure, but none of them have seen the left over plastic. We actually went in to see his fellow one week prior to the EUA because Milo’s eye was bleeding again and she just shrug it off like it’s your standard nose bleed. So, what the hell was that? Are they not able to see that without putting him under? It all worked out in the end and it was nothing too serious, but seriously, it now makes me have doubt on the fellow and I am not sure if I would trust her. I don’t think she is or will be reading this blog, but if you do, sorry but my kid is way more important than you are.
Milo already outgrew the scleral shell from Thanksgiving and we got a new mold made but unfortunately it got lost in the mail so now we have to wait a little bit longer. Matilda is officially a walker. She started over a month ago but its just in the past week that she got very good at it. She rather walks than crawls now. So, watch out world, you can’t stop her now.
I will post pictures of the kiddies soon. I’ve been wanting to do that since the holidays and our vacation and now it’s getting too ridiculously late and I promise I will. So, hold on a little bit longer.
And oh guys, Spring is here because bugs are out. They are in our house already and I do not like them. If there is such a thing where I can have some sort of laser bug detector bubble around my house to prevent the bugs from entering, that would be super and please tell me the 1-800 number to call so I can order. Or if you have the same idea and want to get in on this invention, give me a call. Sorry bugs, I don’t really care for you but when you are in my house, then I care and I kind of have to get rid of you. Please just don’t come in so I don’t have to be mean to you. Thanks.